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Gary S.'s avatar

This one’s about medication shortages. I found myself facing down one of those for more than a week, and for the first medication in my life that I can’t do without. And this medication has been around since the 1990’s.

Dofetilide is an anti-arrhythmic medication to treat atrial fibrillation and atrial flutter. Over the last 3 months I’ve had 3 Emergency Department visits and a hospital stay when a first-line treatment didn’t work. This medication is holding me stable and is keeping me away from the Emergency room or worse. It’s supposed to succeed in about 70% of patients with my condition.

When the time came for a refill, I was told by my pharmacy it was on backorder. Three pharmacy phone calls later and after almost a week’s delay from the original promised date, they were willing to order it from another supplier. But then they filled the 30 day prescription instead of the 90 day one. Since this is in short supply, I had to have my MediCare Advantage plan call the pharmacy to have them unwind the first order and provide the remaining 60 day supply.

After a sigh of relief, I just got a text message. The medication is on backorder and delivery time has slipped 2 days since my phone call this afternoon. I called and spoke to a pharmacist who told me that even though I found several manufacturers who have it in stock, they must go through one of two intermediate suppliers to get it from a different manufacturer. Pharmacy benefit managers? They said they will follow up on Monday to get it ordered.

Many cardiac patients depend on this drug. Going off of it for an alternative is risky and would require another hospitalization. Surely my MediCare Advantage program would be on top of this to prevent that extra expense. Or would they? And how many other essential medications are handled in this hit or miss fashion? What happens to people who are less able to follow up than I can? And, who can fix this?

I’ve contacted my cardiologist, my Congresswoman and the White House. Is the active ingredient made overseas? Is there conflict between manufacturers with some holding the power of first supply?

This is America, isn’t it? We’re not a third world country, or are we?

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Jill Grunewald's avatar

Jersey shore in Neptune, NJ and Community Medical Center in Toms River.

He was not incontinent and could feed himself, cut his own meat, order his food, and get in and out of bed. They refused him all of those things, including giving him a recliner. Community medicine wouldn’t feed him for four days. 99 1/2!! Now he is unable to do any of those things himself. Hospital staff need to treat patients as individuals, not as invalids. Assisted living facilities need to stop sending 99 year olds to hospitals for falls when the person is unhurt, throws up from a weak stomach after giving medicine and no food, or faulty oxygen meters. Hospitals need to stop heparin and bloodwork when a 99 year old sleeps 18 hours a day with no blood clots, bloodwork numbers remain the same after 3 analyses and there is no medicine changes designated. This is patient abuse and Medicare abuse causing taxpayers millions. Catheters create incontinence… deregulation and retraining is needed. Now a healthy 99 has lost 20 pounds, is weak and refuses to eat!

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